Inspiration through Music

I’m seeing lots of posts of Lymies and Spoonies struggling. I too am in a lot of pain and am struggling with both addressing the pain and expressing it. A friend posted a status yesterday and I could tell she was getting to the end of her rope. For me, when I get to those moments of extreme trial and tribulation, I use little “tricks” to help me make it through… one more day, one more minute, one more breath. One of my favorite “tricks” is to sing this song to myself.

What songs inspire you? Share links in the comments!

“We are going, heaven knows where we are going,
We’ll know we’re there.
We will get there, heaven knows how we will get there,
We know we will.

It will be hard we know
And the road will be muddy and rough,
But we’ll get there, heaven knows how we will get there,
We know we will.

We are going, heaven knows where we are going,
We’ll know we’re there.”

Video

Cognitive Miserliness and Spoons

Over Labor Day Weekend I attended Dragon*Con. I sat in on a panel discussion “Why Mensa Will Never Solve World Hunger”, which was about rationality in contrast to intelligence. The speaker, Barbara Drescher, spoke about cognitive miserliness: the idea that we use the minimum amount of energy to meet our cognitive needs.

Many Lymies and Spoonies talk about how they feel stupid due to Lyme Brain Fog, which has many potential causes including neurologic Lyme or because of the pain. If we build off of Christine’s spoon theory, then this makes sense that we use our limited energy to survive the pain, which does not leave us resources to use our cognition.

“The cognitive miser idea is fundamental in the information-processing model of social cognition because it would be enormously taxing on individuals’ to attend to all information in the world scientifically (basically, with a high degree of analysis), with individuals becoming overwhelmed by the confusion and complexity of the social stimuli that they are attending to.” [1]

I know that this is a significant point but, ironically, I struggle to articulate it. I promise to continue to mull it over and hopefully arrive at something poignant. If someone wants to help me develop this more fully, please let me know!

I miss the woman I used to be

It’s been quite a while since I’ve posted. I had a torturous sinus migraine for five days last week. As soon as I recovered, I had to play catch up on life. I have a hard time figuring out how to prioritize. Which comes first? School? Blogging? HOA Board of Directors work? Life? Me? I just move them around like a game of Three Card Monte never sure of what goes where. In the meantime, here is a blog post I wrote a few years ago. I hope it will suffice in the meantime.

I miss the woman I used to be. <– click here to read my old post.

“I Have a Dream” and Mantras

I have a confession: I don’t have a mantra*. This is not to say that I haven’t meditated with a mantra but many spiritually inclined people have a personal mantra that is theirs.  I have “tried on” many of the traditional mantras, but none felt quite right for me.

Today is the 50th anniversary of Dr Martin Luther King, Jr.’s “I have a Dream” speech. In my Art of Teaching class today we watched his speech and the mantra “I have a dream” truly resonated for me. I plan on trying it out for a few weeks and see how it fits.

(channeling my best Rev King)

  • I have a dream that I will regain my life.
  • I have a dream that I will be able to support myself.
  • I have a dream that awareness about Lyme Disease and its long term effects will become recognized.
  • I have a dream that we will all return to health and wellness; that we all will over come the suffering that this unseen illness bears down upon us.
  • I have a dream that I will be able think clearly, unburdened by Lyme brain fog.
  • I have a dream that I will be strong again.

I will report back and let you know how it goes- if it still speaks to my heart or if I will continue to search for my mantra.

*Mantra: a word or sound repeated to aid in concentration during meditation or times of stress. I will discuss mantras more in future posts.

The Seven Principonies of Unitarian Universalism

Allegra Knight:

a clever take on an important aspect of my faith: Unitarian Universalism.

Originally posted on Lack Of A Clever Title:

Confound these ponies, they have found a way into my spirituality.

I’m a religious brony, I’m not afraid to admit it. I work a lot in my church with the teens and I have had to explain to a few of them what a brony is and had to defend why I am a brony to others. What I tell them is this: “The ponies have a lot to teach”

Every Saturday, I sit and watch the ponies with my 8 year old daughter and my 4 year old son. We laugh for a half hour and when the show is down, we turn off the television and talk for a few minutes about what we saw. I like to take the episodes lesson and see if they can apply it to their life. Often I find that it boils down to the Seven Principles of Unitarian Universalism, which got…

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Another day of rest.

I know it’s been a few weeks since I’ve posted a vlog. Between traveling and preparing for my last semester of my Master’s, I haven’t had enough spoons to get one done. I wanted to reassure you that I haven’t forgotten about you all, nor have I fallen into a Lyme hole. I promise to return as soon as I need good procrastination excuses from my homework.

Today I am resting, saving up spoons and planning on going into my last semester with guns blazing!

Wondering about what I’m talking about when I say “spoons”? Check out The Spoon Theory by Christine Miserandino

Napping: to do or not to do?

I used to be the best napper. Seriously, I could lay down on the couch, in the middle of the day, in a busy apartment, fall asleep immediately, power nap for 15 minutes and wake completely refreshed.

In my post-Lyme life, this is one of the many things stolen from me. Post-Lyme I have to power through because I know as soon as I lay down, I’m down for the rest of the day. At this exact moment I’m tired: I’ve accomplished a lot today and I am spent. In my pre-Lyme life, I would lay down and take a 15-30 minute nap and get back to work. Post-Lyme, I fear that I will lose momentum.

This leaves me with the question: to nap or not to nap?

What would you do? Leave your response in the comments section below. I love hearing from all of you!

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