I opted to do the ALS Ice Bucket Challenge and add in a Twist of Lyme. I did this because I suspect that, in at least some cases, that many autoimmune diseases (such as ALS, MS, Rheumatoid Arthritis, etc.) may be caused by the Lyme bacteria. Currently, Lyme research is underfunded. This NEEDS to change. There are so many unanswered questions when it comes to chronic Lyme. We need a formal research group at a major university investigating Lyme. I believe that Dr. John Aucott at LymeMD is best positioned to make this happen. There are so many great organizations that focus on Lyme awareness and I am grateful for the very important work they do. They have paved the way for us Lymies to be recognized and I am grateful but we need to fund research now.
So, I was terrified but I took the ice bucket challenge and gave it my own twist of Lyme. I gave $100 to ALS and $100 to LymeMD. Here is my video:
And, I started this movement with my family. My husband went first:
Then my niece:
Then my friend Stephanie joined in the movement:
My neice, Ashley braved the cold and so did her brother David. My friends Sarah and Nicole also joined in on the movement! I pray that the momentum continues to grow. If you are doing the ice bucket challenge, please consider adding in a twist of Lyme! Even just mentioning us helps build momentum and visibility.
And now my friend Michelle opted to do it with a Twist of Lyme!:
Jason also stepped up to the challenge:
My dear friend Ellie also accepted the challenge.
Possibly the funniest video came from Tosha:
The very brave Laurie, got out of bed and donned lyme green to tell her story and take the challenge:
What we really need is more Lymies to share their stories and explain why we need formal research into this very enigmatic disease. I know taking the ice bucket challenge is hard but this is an amazing opportunity to gain visibility and hopefully raise much need funds for Lyme research. Please consider rising to the task and sharing your story publically.
To understand the quality research being produced by LymeMD, here are two examples of peer reviewed articles they have published:
Characteristics of seroconversion and implications for diagnosis of post-treatment Lyme disease syndrome: acute and convalescent serology among a prospective cohort of early Lyme disease patients.
Serum Inflammatory Mediators as Markers of Human Lyme Disease Activity
Additionally, I found an entire website that claims there is a link between ALS and Lyme. Study: 9 in 10 ALS Patients infected with Lyme bacteria. However, I am not a scientist and cannot verify the degree of their scientific methodology. Caveat lector.
Thank you for taking the time to read this and hopefully you will share it widely! Bless you ALL!