A follow up interview with GoTarryn

GoTarryn, the traveling trainer, speaks with me again about life with Lyme.

GoTarryn Personal Training Video Blog (11/16/2015)

GoTarryn invited me back!

GoTarryn, the traveling trainer, requested a follow-up interview and I was thrilled to oblige!

GoTarryn Personal Training Video Blog (08/13/2015)

There are bad days too…

Today I woke up feeling terrible. I could barely make it down the stairs. I was scheduled to ride my horse but was going to cancel because I didn’t think I could do it. But, with the help of my friends, I was able to make it out to the barn and get some good horse therapy. Unfortunately, the heat got to me and now I’m not doing well.

Since I show you all what I look like when I’m strong, I feel that it is only appropriate that I show you my bad days too:

Thank you all for your continued support!! I promise I’ll be up and fighting again shortly.

Why American Ninja Warrior?

I was super sick when American Ninja Warrior resurged in the US. I got it into my head that I was going to fight back from Lyme and I was going to compete on this TV show. Forget the fact that even pre-Lyme I would have had no shot at a successful run of the course, I was bound and determined. For some reason this seemed like a perfectly reasonable goal for a woman who was bedridden and required assistance to complete the most minor of tasks, including making it to the restroom.

Yet once I completed graduate school, another task that should have been impossible for someone who had lost their short-term memory due to the Lyme bacteria burrowing into my brain (or whatever it does, I’m not a neuroscientist), American Ninja Warrior appeared on par to me. Add to it that my dear husband supported me in this outrageous goal.

Applying alone was a herculean task. There was a multipage written application with each page having 15-30 questions each. And then there was the video… I had absolutely no idea how to film and edit a video. But Jeff rose to the task and taught himself Adobe and put together an amazing video (which you can watch here).

Keeping up my physical strength is huge part of my attempt to regain some sense of normalcy in my post-Lyme life. I rock climb, ride my horse, do this amazing thing called RedCord… but what I learned is in order to be a viable candidate, I had to step up my game. I added in Crossover Martial Arts, Kettlebells and NinjaKour. I treated this as a full time job.

I’ve answered the how but I haven’t touched on the why…

I wanted to do this for so many reasons. My original reason was because everyone told me I couldn’t. I wanted to show them all that I may have stumbled temporarily but that I was not staying down. I also wanted to bring attention to the plight of the Chronic Lyme sufferer. Honestly, I originally treated it as a bit of a publicity stunt. But through this journey my motivation shifted- when I announced that I had actually submitted my application, I was flooded with messages of people telling me how I inspired them to keep going in their personal struggles. They said that seeing me fighting back helped them do the same- no matter what, even if it’s baby steps day to day, moment to moment. Then I realized that I wanted to get on the TV to show everyone that they too can keep fighting. Whether it’s Lyme, or depression, or cancer, or your spouse left you… all of these things are equally impactful and you too can keep going.

No matter what happens on this journey, I have no regrets!

Lyme Disease Challenge

Inspiration through Music

I’m seeing lots of posts of Lymies and Spoonies struggling. I too am in a lot of pain and am struggling with both addressing the pain and expressing it. A friend posted a status yesterday and I could tell she was getting to the end of her rope. For me, when I get to those moments of extreme trial and tribulation, I use little “tricks” to help me make it through… one more day, one more minute, one more breath. One of my favorite “tricks” is to sing this song to myself.

What songs inspire you? Share links in the comments!

“We are going, heaven knows where we are going,
We’ll know we’re there.
We will get there, heaven knows how we will get there,
We know we will.

It will be hard we know
And the road will be muddy and rough,
But we’ll get there, heaven knows how we will get there,
We know we will.

We are going, heaven knows where we are going,
We’ll know we’re there.”

Video