Brain Fog and Escalators

Many folks don’t understand that even the simplest activities can be too much when struggling with chronic pain, even going out to the movies. But I really wanted to see Atomic Blonde in the theater, so I put on my big girl panties and we went to the mall. My husband parked the car and we walked towards the escalators. I followed a young boy up the escalator. I kept walking but I wasn’t making progress. The young boy had made it to the top but I was still stuck at the bottom, continuing to walk wondering why I wasn’t also at the top. “Allegra,” my husband interrupted my struggling thoughts. “You’re on the down escalator.” Awoken from my fog, Jeff led me up the up escalator. We made it to the theater but I didn’t even remember the film and when it came out on HBO I thought I hadn’t seen it yet.

My working memory, short term memory, and general cognitive processing are frequently effected but never in a patterned, predicable manner. So I must figure out how to compensate on the fly. It’s often difficult to articulate thoughts or even find simple words at times, (“that thing, with the pages… that you… you know… read.” “You mean a book?” “Yes. That’s it. A book.”)
They call it Lyme brain fog (or cancer brain fog, etc.) and it feels like swimming through thick mud. If you’ve never experienced it, I’m sure it looks strange to a healthy person. But please, be gentle and compassionate with us. We’re doing the best we can.

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Surviving Allergy Season

Omg. I’ve been dying this allergy season. If I’m outside for more than 5 minutes, my head starts thumping. I’m so desperate that I considered wearing a mask, but my glasses make over the ear masks difficult to wear. Exploring Amazon.Com I found an alternative! They go IN your nostrils. So far it’s comfortable but we’ll see how it works when I March for Science tomorrow.

Woody Knows Ultra Breathable Nasal Filters

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There are bad days too…

Today I woke up feeling terrible. I could barely make it down the stairs. I was scheduled to ride my horse but was going to cancel because I didn’t think I could do it. But, with the help of my friends, I was able to make it out to the barn and get some good horse therapy. Unfortunately, the heat got to me and now I’m not doing well.

Since I show you all what I look like when I’m strong, I feel that it is only appropriate that I show you my bad days too:

Thank you all for your continued support!! I promise I’ll be up and fighting again shortly.